Whenever you think that you are alone in your pain and that nobody understands you, I invite you to take a look at a profound, heartfelt poem by PJ Langhoff, Lyme disease sufferer and author of multiple books on Lyme disease. In it, she describes the difficulties of living day-to-day with Lyme disease. As I read this poem, I felt myself living inside of it. It so accurately depicts a Lymie's suffering that you feel as though she might be describing you. May you be blessed by her words!
Following is a link to the poem: